“Your baby has Down syndrome.”
These are the words Jo Ann Simons heard four hours after giving birth to her first child, Jonathan, at Brigham & Women’s Hospital. It was 1979, and he needed to be moved to nearby Children’s Hospital because he was in obvious cardiac trouble. Many procedures would follow, including three delicate open-heart surgeries.
“There were no services available at the time,” says Simons, who had to walk down Longwood Avenue in Boston the next day to get to Children’s Hospital to see her son, without even the offer of a wheelchair.
Once there
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